In home care for ALS patients is an important way to provide comfort, support, and quality of life for those diagnosed.
What is ALS?
ALS stands for amyotrophic lateral sclerosis. It is a progressive, neurodegenerative disease that affects the neurons. Known as Lou Gehrig’s Disease, the ALS Association website offers a multitude of answers about the disease.
- By the Number – Approximately 30,000 Americans have ALS. This article in the New York Times discusses the fund raising efforts of the Ice Bucket Challenge in 2014 and related statistics.
- Types of ALS – There are 2 main forms of ALS, sporadic (most common) and familial (10% or less). A third type is known as Guamanian ALS and specifically affects people who live in Guam.
- Age – The typical diagnosis of ALS affects those of an average age of 55, between the ages of 40 and 70. There are diagnoses at younger ages including juveniles.
- Life Expectancy – Statistics show that those diagnosed with ALS will usually succumb to symptoms (often respiratory complications) of the disease within 5 years of diagnosis. However, Stephen Hawking and some others defy these statistics.
ALS Diagnosis & Progression
- Diagnosis – A series of comprehensive testing will help determine a diagnosis of ALS.
- Symptoms – The symptoms of ALS can include clumsiness, slurring of speech, and extreme fatigue.
- Stages – The MDA offers a concise list of the stages of ALS.
- Coping & Support – There are some key points for coping that you should keep in mind. Local support groups can be incredibly helpful also.
About In Home Care for ALS
- Personal Care – The fast progression of the disease can quickly create a need for constant care with personal hygiene, dressing, and other daily activities.
- Family Caregivers – This free guide can be very helpful for those who are the family caregiver for someone they love. It focuses on both the care of the ALS patient and the importance of taking care of the caregiver too. Utilizing professional home health care aides can be extremely helpful.
- Hospice Care – Because ALS eventually leads to fatal symptoms it is important to realize the need for preparation and acceptance of hospice care.
You do not have to be alone and afraid if you or someone you love has been diagnosed with ALS. Above & Beyond Home Health Care offers in home care for ALS patients that can make a world of difference for you and your loved ones.
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